Beandri Booysen, a 19-year-old South African woman renowned for her inspiring and motivational posts on TikTok, tragically passed away on Wednesday, December 18, 2024.
Her family shared the heartbreaking news on social media, talking about Booysen’s remarkable efforts in raising awareness for individuals affected by Progeria, also known as Hutchinson-Gilford progeria syndrome.
In a Facebook post, Booysen’s loved ones announced her passing, describing her as “one of South Africa’s most beloved and inspiring young women.”
They fondly remembered her vibrant personality, infectious laugh, and her remarkable resilience in the face of her health challenges.
The post read: “Beandri was not only known for her vibrant personality and infectious laugh but also as the last surviving individual in South Africa living with Progeria — a rare genetic condition that causes children to age prematurely.”
Booysen’s family praised her unwavering spirit, stating that she “radiated hope and joy” despite her health struggles.
They noted that she utilized her unique spirit to inspire thousands of people worldwide. The family respectfully requested privacy during “this profoundly difficult time” but assured that details about a memorial service would be shared “in due course.”
As news of her passing spread, tributes poured in on TikTok, with many users expressing their admiration for Booysen’s courage and resilience.
According to The Mayo Clinic, Progeria is a rare genetic condition that causes children to age rapidly, with symptoms typically beginning within the first two years of life. The clinic noted that children with Progeria generally appear healthy at birth, but soon exhibit symptoms such as slowed growth, loss of fat tissue, and hair loss.
Heart problems or strokes are often the eventual cause of death in most children with Progeria, with an average life expectancy of about 15 years. However, some individuals may pass away at a younger age, while others may live longer, up to approximately 20 years.
While there is currently no cure for Progeria, The Mayo Clinic emphasized that new treatments and research offer promise for managing symptoms and complications associated with the condition.
